Baby Luna's CDH Story: July 2012

July 2, 2012

Philly Baby meets NYC

Since Daddy took the early part of this week off for the 4th of July we decided to spend the day in NYC. This was Luna's first trip to the city. It was a beautiful day, thankfully not as miserably hot as this past weekend was. We enjoyed a nice leisurely walk on the High Line, had lunch at Pop Burger, and bought dessert to-go at Chelsea Market. Overall, a beautiful day!

Strolling the High Line

Smelling the flowers

Family

Bottle break

Daddy and his girl

My beautiful baby

Our Lil' Blessing

I wanted to share this beautiful video that my husband created to share with family and friends at Luna's baptism. It shows the crazy ride we were on before, during, and after Luna's birth. The whole journey feels surreal at this point, but watching the video reminds me of how blessed we are to have Luna with us. I feel it every singe time I look at her. She truly is a miracle from God.

Here is the link to the video: Our Lil' Blessing

Hope you enjoy it!

What is Congenital Diaphragmatic Hernia (CDH)?

CDH is characterized by the development, very early in gestation, of a hole in the diaphragm, the breathing muscle that separates the chest from the abdomen. As a result, the intestines and other abdominal organs can move into the chest and compress the developing lungs. This prevents the lungs from growing and developing normally which can cause reduced blood flow to the lungs and pulmonary hypertension.

CDH occurs in about 1 in every 2, 500 live births. The cause of CDH is not yet known. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma, and other medical problems.