Baby Luna's CDH Story: Celebrating Luna by Paying it Forward

March 6, 2013

Celebrating Luna by Paying it Forward

Our dear Luna is turning the “BIG 1” this month. We are beyond happy, excited, and thankful to reach this very momentous milestone with our strong and beautiful daughter. We thought we would do something special to give thanks to one of the organizations that provided us with so much support throughout our very bumpy CDH journey.

We've decided to ask our family, friends and coworkers to participate in a month long CHERUBS HOPE Tote Bag Drive to collect the various items that go into each Totebag that is then delivered to parents expecting a CDH baby. We are so excited to "pay it forward" to this great organization.

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What is Congenital Diaphragmatic Hernia (CDH)?

CDH is characterized by the development, very early in gestation, of a hole in the diaphragm, the breathing muscle that separates the chest from the abdomen. As a result, the intestines and other abdominal organs can move into the chest and compress the developing lungs. This prevents the lungs from growing and developing normally which can cause reduced blood flow to the lungs and pulmonary hypertension.

CDH occurs in about 1 in every 2, 500 live births. The cause of CDH is not yet known. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma, and other medical problems.