Baby Luna's CDH Story: Busy weekend

April 16, 2012

Busy weekend

I haven't had a chance to post in a few days. We've just been pretty busy around here in the NICU. For starters, Luna's feedings have been increased all the way to 70mls every three hours which means lots of pumping on my part. Daddy and I also had to take a CPR class as part of our eventual discharge. We also had a ton of visitors again this weekend. Here are some highlights from the weekend.

Lola, Lolo, Father Jude (who married us), Tita Lee, and Tita Inday came to see Luna.

Tita Joanne, Tito Francis, and Tita Ivy paid Luna a visit also.

Although my little cousin, Ada, was unable to go in and see Luna she was lucky enough to get a chance to meet Hot Chelle Rae who were at CHOP visiting the kids.

Tita Jenn and Tito TJ also got to meet Luna this weekend.

Mama also got to meet her great-granddaughter for the first time.

"Look, Mommy! No picc line!!!" Luna is now getting her meds orally and can move both her arms freely. We're sooooooo happy!!!

QT with Daddy before he left for work. Bittersweet :/

1 comment:

RegalleApril 16, 2012 at 11:10 AM
so happy she is doing so well!! you have been blessed with the most amazing and beautiful daughter :) I continue to have you all in my prayers!
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What is Congenital Diaphragmatic Hernia (CDH)?

CDH is characterized by the development, very early in gestation, of a hole in the diaphragm, the breathing muscle that separates the chest from the abdomen. As a result, the intestines and other abdominal organs can move into the chest and compress the developing lungs. This prevents the lungs from growing and developing normally which can cause reduced blood flow to the lungs and pulmonary hypertension.

CDH occurs in about 1 in every 2, 500 live births. The cause of CDH is not yet known. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma, and other medical problems.