Baby Luna's CDH Story: Day 7

March 31, 2012

Day 7

We are so blessed that Luna had a good day today. The umbilical arterial line on her belly button was removed so that is one less wire to deal with. Daddy also got to change her diaper for a second time.

sleeping Luna

Lolo visiting Luna

Lola so happy to visit her first grand baby

Tita Tess and Luna

Luna getting her baby tan since her bilirubin was high.

We were so happy to get to see Lolo, Lola, and Tita Tess today. We also wanted to say thank you to Tito Albert and Tita Vivian for the very sweet and thoughtful care package.

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What is Congenital Diaphragmatic Hernia (CDH)?

CDH is characterized by the development, very early in gestation, of a hole in the diaphragm, the breathing muscle that separates the chest from the abdomen. As a result, the intestines and other abdominal organs can move into the chest and compress the developing lungs. This prevents the lungs from growing and developing normally which can cause reduced blood flow to the lungs and pulmonary hypertension.

CDH occurs in about 1 in every 2, 500 live births. The cause of CDH is not yet known. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma, and other medical problems.